cysticfibrosisnewstoday.com 2019-02-09 04:00 CF Family Friday: The Gaudenzi Mother-Daughter Duo The cystic fibrosis (CF) journey necessitates numerous partnerships, and while a medical partnership is one of the most constructive,... cysticfibrosisnewstoday.com 2018-11-27 04:00 Cystic Fibrosis Care in Mexico and Brazil: Two Interviews For the first part of this series, I interviewed two women from two different... cysticfibrosisnewstoday.com 2018-10-11 03:00 Why It’s Better to Be Open About CF, Especially When Dating Dating can feel like a wasteland of hookups, insincerity, miscommunication, and... cysticfibrosisnewstoday.com 2018-09-15 03:00 3 Cystic Fibrosis Diagnosis Stories Earlier this week, I asked the community via Instagram when their first sweat... cysticfibrosisnewstoday.com 2018-09-08 02:02 Reminders to Those Who Mourn For many of us, being a part of the cystic fibrosis community is obligatory. No matter our degree of engagement, we have CF and therefore...
cysticfibrosisnewstoday.c... 2018-09-01 03:00 What People with Cystic Fibrosis Want Their Doctors to Know Healthcare professionals are unavoidable when dealing with chronic illnesses like cystic fibrosis. Our doctors and nurses are crucial to our health and often become like family, thanks to how regularly we see them. In...
cysticfibrosisnewstoday.c... 2018-08-18 03:00 CF Mamas Discuss Pregnancy Health, Delivery, and Breastfeeding We’re back this week with part two of our CF Mamas Interview Series, this time we’re discussing the impact of pregnancy on health, delivery, and breastfeeding! (Check out last week’s post.) (Courtesy of Janeil...
cysticfibrosisnewstoday.c... 2018-08-11 06:00 CF Pregnancy: The Words of 4 Mothers Who Have Had Babies August kicked off with World Breastfeeding Week, a celebration recognized by more than 79 countries that promotes breastfeeding for the first six months of life. The celebration made me wonder about pregnancy and...
cysticfibrosisnewstoday.c... 2018-08-03 03:00 Tips to Make Traveling with CF a Little Easier Traveling is stressful in itself, and CF makes the task extra complicated. Deciding how much medicine to bring and successfully making it through airport security can be a huge headache, so I’ve compiled a list of...
cysticfibrosisnewstoday.c... 2018-08-03 03:00 Tips to Make Traveling with CF a Little Easier Traveling is stressful in itself, and CF makes the task extra complicated. Deciding how much medicine to bring and successfully making it through airport security can be a huge headache, so I’ve compiled a list of...
cysticfibrosisnewstoday.c... 2018-03-15 19:32 7 Tips for Preventing Reflux and Aspiration Dr. Gwen A. Huitt, an infectious disease doctor with a special interest in mycobacteria and cystic fibrosis, spoke in our last article about what aspiration is and how it’s dangerous to CF patients. “Aspiration is...
cysticfibrosisnewstoday.c... 2018-03-13 20:47 CF Foundation Launches Video Series About Staying Fit The Cystic Fibrosis Foundation has launched a series of videos aimed at helping cystic fibrosis patients get fit. The videos are aimed at different age groups and look at age-appropriate ways for patients to...
cysticfibrosisnewstoday.c... 2018-03-08 20:04 5 Extreme Challenges That Have Raised Money for Cystic Fibrosis Fundraising is important to cystic fibrosis organizations like the U.K.’s Cystic Fibrosis Trust. The money helps support research into new therapies and possible cures, along with offering services to...
cysticfibrosisnewstoday.c... 2018-03-06 20:12 This Wristband Can Detect Cystic Fibrosis and Diabetes A wristband has been designed to help doctors detect diseases like cystic fibrosis and diabetes. The wearable device has a mechanism that can determine the levels of sodium and chloride in a person’s sweat — two...
cysticfibrosisnewstoday.c... 2018-03-01 20:26 Why the Mauli Ola Foundation Is Helping CF Patients Surf James and Charles Dunlop had already done plenty for the cystic fibrosis community as the founders of Ambry Genetics. Their diagnostics company was the first to do a full CF gene analysis that looked at the entire CFTR...
cysticfibrosisnewstoday.c... 2018-02-27 20:08 Why Aspiration Is a Silent, Hidden Danger for Cystic Fibrosis Patients Dr. Gwen A. Huitt is an infectious disease doctor at National Jewish Health with a special interest in mycobacteria, bronchiectasis, and cystic fibrosis. Here, she talks to us about the hidden dangers of a major medical...
cysticfibrosisnewstoday.c... 2018-02-22 21:10 Artist Creates Sculptures That Reflect the CF and Lung Transplant Experiences Hanging from the wall of Vertex Pharmaceutical’s Boston office is a massive set of sculpted lungs — pink and red, branching out with wide airways. The sculpture (made of foam, corrugated plastic, and glitter) is...
cysticfibrosisnewstoday.c... 2018-02-20 20:14 The Evolution of CF Treatments Cystic fibrosis care has seen such rapid advances that the average CF patient has likely seen a dramatic evolution in treatment strategies in their lifetime. Here are some of the biggest milestones that shaped...
cysticfibrosisnewstoday.c... 2018-02-15 21:03 Lung-Themed Watches Sold to Benefit CF Research Emily Lyons hasn’t stopped thinking about her sister Julia since she passed away from cystic fibrosis in 2011 — and she doesn’t want to. So, she created JWLS, a timepiece company with a set of lungs as its logo....
cysticfibrosisnewstoday.c... 2018-02-13 20:58 Virtual Reality Used In Hospital For Cystic Fibrosis ‘Distraction Therapy’ In their minds, cystic fibrosis patients are cycling through an African safari, exploring the animals and environment. In reality, they’re sitting atop a bike machine with a thick, black visor engulfing half their...
cysticfibrosisnewstoday.c... 2018-02-08 21:34 ‘Breathe In’ Podcast: A Late-Night Talk Show for the CF Community “There was a girl I was very interested in,” says Gunnar Esiason. “We were hanging out and, it’s a long story, but my feeding tube exploded on her.” “I was dating this guy, and he saw my port-a-cath and...
cysticfibrosisnewstoday.c... 2018-02-06 23:14 Facebook Live: CFer Josh Llewellyn-Jones Shares His Health Tips "I train to stay alive" CF warrior Josh Llewellyn-Jones shares his tips for improving your health with CF, and why he loves having cystic fibrosis. Posted by Cystic Fibrosis News on Friday, March 31,...
cysticfibrosisnewstoday.c... 2018-02-01 20:58 7 Unexpected Germ Risks for Cystic Fibrosis Patients Most CF patients already know the classic places or objects to be cautious around when it comes to germ precautions: remote controls, nebulizer cups, cell phones, hospital areas, etc. With the flu outbreak in epidemic...
cysticfibrosisnewstoday.c... 2018-01-29 23:21 6 Ways to Help You Take Care of Your Lungs We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it’s important to look after these vital organs as best we can. The Rush...
cysticfibrosisnewstoday.c... 2018-01-25 21:52 10 Little-Known Weird Facts About Cystic Fibrosis After several decades of research into cystic fibrosis, there’s a wealth of weird information out there about the disease, its common bacteria, and medications. How many of these did you know already? 1. It is...
